About the Event

Saudi Rare Diseases

Welcome to our rare disease event, where we're paving the way for groundbreaking progress and innovation in the field. With sessions focusing on Rare Diseases Centers of Excellence, orphan drug access, and gene therapy, we're uncovering new paths for treatment and care.

Our agenda delves into biotechnology strategies, genomics, and policy shaping, offering global perspectives and local case studies from Saudi Arabia. Under the slogan "Rare Visions, Shared Futures: Uniting for Progress," we invite you to join us in networking with experts, staying updated on the latest advancements, empowering patients, advocating for change, and collaborating towards a brighter future. This event is tailored for healthcare professionals, policymakers, patient advocates, industry leaders, academics, investors, entrepreneurs, and global partners alike. Don't miss this opportunity to be part of a transformative journey towards improving outcomes for individuals affected by rare diseases.

11 Topics
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International - Speakers
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Rich Topics
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2K+ Attendees
  • 9
    Skilled Speakers
  • 3
    Sessions Full Day
  • 11
    Topics
  • 4
    X
    Networking with Industry

Meet Our Speakers

Prof. Ahmed Al-jedai
Prof. Ahmed Al-jedai
Founding President of Saudi Society of Clinical Pharmacy
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Dr. Hajer AlMudaiheem
Advisor to the Assistant Deputy Minister, Therapeutic Supportive Services, MOH
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Dr. Amal Al Hashem
Consultant Pediatrician- Genetic and Metabolic Medicine
Prof. Tomasz Kluszczynski
Prof. Tomasz Kluszczynski
Founder ACESO Healthcare Consulting
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Dr. Mohamed A. Alfaleh
Biotechnology Expert, Ministry of Industry and Mineral Resources
Dr. Abdelali
Dr. Abdelali Haoudi
Chairman, Strategy and Business Development, KAIMRC
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Prof. Majid Al fadhel
Deputy Executive Director of KAIMRC
Dr. Zuhair Al-Hassnan
Prof. Zuhair Al-Hassnan
Consultant Geneticist
Dr. Durhane
Dr. Durhane Wong- Rieger
Chair of Rare Disease International

09:30 - 10:15 registration
Registration

Please make sure to book your seat by filling the following FORM.

10:15 - 10:30 opening
Prof. Ahmed Al-Jedai

Opening Remarks.

10:30 - 10:50 opening
Prof. Ahmed Al-Jedai

Unveiling the Future: Orphan Drug Evaluation and Access.

10:50 - 11:10 Dr. Hajer
Dr. Hajer Al-Mudaiheem

Building the Foundation: Infrastructure Development for RD COE Centers: KSMC A CASE STUDY.

11:10 - 11:30 Prof. Amal
Prof. Amal Alhashem

Empowering Patients in Rare Disease Care: A Holistic Approach.

11:30 - 11:40 Patient
Patient

My Journey with a Rare Disease.

11:40 - 12:00 Prof. Ahmed
Prof. Ahmed Al-Jedai

Pioneering Integrated Value-Based Programs for Gene Therapies in KSA.

12:00 - 12:10 q&a

Questions and Answers

12:10 - 13:10 prayer and lunch

Prayer and Lunch Break.

13:10 - 13:30 Dr. Mohamed
Dr. Mohamed A. Alfaleh

Fostering Biotechnological Innovation: Government Strategies in the Localization of Biologics, Cell and Gene Therapy in Saudi Arabia's Industrial Vision.

13:30 - 13:50 Dr. Abdelali
Dr. Abdelali Haoudi

Bridging Hope and Innovation: Biotechnology Breakthroughs in Tackling Rare Diseases in KSA

13:50 - 14:10 Prof. Majid
Prof. Majid Alfadhel

Navigating Gene Therapy for Rare Diseases: Current Landscape, Hurdles, and Future Trajectories.

14:10 - 14:20 q&a

Questions and Answers

14:20 - 14:40 Dr. Zuhair
Prof. Zuhair Al-Hassnan

Rare Disease Advocacy: Policies at the National Level.

14:40 - 15:00 Prof. Tomasz
Prof. Tomasz Kluszczynski

Anthropocentric Healthcare- Why and How to Involve Patients in Decision-Making Processes.

15:10 - 15:20 Dr. Durhane
Dr. Durhane Wong- Rieger

Advancing Rare Disease Public Policy: National Strategy Frameworks.

15:20 - 15:40 final remarks

Closing and Final Remarks.

Get Your Brochure Here

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FACT SHEET

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We Bring Together Worlwide Sponsors
to Discuss the Future.

SHOWCASE 2023 CONFERENCE

We Make Memories Together

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Photobooth Photo Sanofi Representatives
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Speakers Podium photo
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Dr. Hajer Presenting
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Photobooth Photo Representatives from multiple parties